The Cerebral Palsy Alliance of Australia publishes a weekly comprehensive bulletin summarizing CP research studies around the world.   Bulletins can be downloaded from their website or you can subscribe to have it emailed to you.

Some samples are attached.  CP Research News 2014 – August 11 CP Research News 2014 – August 18 (1)  CP Research News 2014 – August 25

The Cerebral Palsy International Research Foundation  is a not for profit 501(c)3 organization dedicated to funding research and educational activities directly relevant to discovering the cause, cure and evidence based care for those with cerebral palsy and related developmental disabilities.

Michigan CP Research

University of MI CP Research Registry

The Department of Physical Medicine and Rehabilitation at the University of Michigan introduces the first-of-its-kind in the state of Michigan the Cerebral Palsy Research Consortium of Michigan (CPRCoM) research registry.   This is the best way to become informed about CP Research studies in Michigan.   734-936-6023  

Testing Children’s Working Memory:  Working Memory Study

U of MI Research StudiesResearch Studies at U of M 2014

MI Research Studies:   

See also the CP Research Registry of Michigan Newsletter  CPRCoM Newsletter 2

Outcomes After Rhizotomy (HUM00070864)
Adults with cerebral palsy, ages 18-35: We are studying how a surgical procedure called a rhizotomy has affected people as they age. You can participate in the study even if you haven’t had the surgery! We are looking for adults with CP to answer questions about pain, fatigue, and function. The survey is online, and can be completed from
home in about 30 minutes. You’ll receive $5.00 for your time. If interested or for more information: Contact the researchers at 734-764-5217 or
PMR-CPresearch@med.umich.edu

Brain-Computer Interface (HUM00012968)
Researchers are looking for individuals with cerebral palsy age 8 years and up for a very unique study. This study is exploring how a person can control a computer and even take tests to show their capabilities, by using ONLY their brain waves – no talking and no hands! If interested or for more information : Contact the researchers at 734-936-7178 or umdbi-recruit@umich.edu

Health Self-Management (HUM00081812)
Teens and young adults , ages 13-29 years, with cerebral palsy are invited to take part in this study. Participants will complete standard paper/pencil or computer tests, so researchers can measure thinking and motivational factors. The study will take 3 hours and participants will receive $50 for their participation. If interested or for more information : Contact the researchers at 734-936-6023 or
PMR-UMACAL@med.umich.edu

Working Memory (HUM00055681)
Researchers are interested in learning more about how children with cerebral palsy remember information. We invite children, ages 6-16 years, to take part in this study and try computerized tests of working memory. The study will take approximately 3 hours and participants will receive $50 for their time and effort. If interested or for more information : Contact the researchers at 734-936-6023 or
PMR-UMACAL@med.umich.edu

Measure of Pain (HUM00085574)
We invite people with cerebral palsy, ages 13 years and up, who can speak, sign, or use a communication board to tell us their own pain level. Responses will be videotaped during a medical doctors exam. The videotape will be shown to raters and we ask them to guess the pain level and see how close they get to what the pain level really is.
This study will take about 5 to 10 minutes to fill out forms and consents and for the videotape. If interested or for more information : Contact the researchers at 734-936-8613

Screening and Exercise Health (HUM00067890)
We invite adults with cerebral palsy who are ages 18-45 years and have NOT participated in exercise during the past 6 months to help researchers find new ways to identify general cardiovascular and metabolic health risks and utilize exercise participation to reduce these risks. Participants will receive an honorarium up to $220 for full participation in the study. If interested or for more information: Contact the researchers at 734-763-0692 or mdpeterz@med.umich.edu

 

ADULTS WITH CP UPPER LIMB MOVEMENT AND POSTURE STUDY

The Motor Control Lab in collaboration with the Department of Physical Medicine and Rehabilitation is conducting a study that characterizes the differences in quality of upper limb movements relative to posture and dual task condition in adults with cerebral palsy. It further relates changes in upper limb performance under varying conditions to balance. Participants are compensated $30 per session. Funding for this study is through the National Institute on Disability and Rehabilitation Research (NIDRR) (HUM00000277).

Participants should be able to do the following:

  • Stand independently without a hand held assistive device for 15 minutes
  • Walk a distance of 5 yards without a hand held assistive device
  • Tolerate 2 hours of testing
  • To learn more about participating in the study please contact:

Dr. Susan Brown or Dr. Jeanne Langan in the Motor Control Laboratory at the University of Michigan at 734-763-5829

 

The ULTrA Program:  More information at: www.motorcontrol.umich.edu/ultra

Sensorimotor Training and Assessment in Individuals with Hemiplegic Pediatric Onset Disability; the ULTrA Program

Current funding: Department of Education – National Institute on Disability and Rehabilitation Research #H133G050151, PI: Susan Brown, Ph.D.

Congenital Brachial Plexus Palsy (CBPP) is an injury to the peripheral brachial nerve plexus caused by traction applied on the spinal nerve roots during delivery. Individuals with CBPP can have impaired upper limb movement due, in part, to muscle weakness. Few studies exist which have examined these deficits from a sensorimotor perspective. This study examines proprioceptive abilities using a position matching task. Increased understanding of this population’s proprioceptive ability will drive the development of new and more effective therapy treatments in the traditional clinical environment or in-home intervention programs for individuals with CBPP.

The objective of this study is to determine the effectiveness of a task-specific training program (ULTrA Program) on upper limb function. The idea to be tested is that a home-based upper limb training program will lead to improved arm and hand function in adults with hemiplegic cerebral palsy. Participants receive individualized instruction on the task specific intervention training protocol (ULTrA program). The sessions are 5 times/week for 8 weeks. Each training session lasts approximately 40 minutes. An innovative aspect of this intervention is that, twice a week, each participant is joined “virtually” and observed during the training session online. Compensation ranges from $20 for a single testing session to $260 for full participation in the intervention. Funding for this project is through the National Institute on Disability and Rehabilitation Research (NIDRR) (HUM00000277).

Individuals interested in participating in the ULTrA program should be:

  • – Adults between the ages of 16-80 with hemiplegic cerebral palsyultra_goble.jpg
  • – Independent community dwellers
  • – Cognitive and English skills necessary to understand the training program
  • – Adequate upper limb range of motion and muscle strength to perform reaching movements
  • – Adequate ability to partially open and close the affected hand
  • – Willing to participate in an 8 week training session

Origins, Wellness, and Life History in CP (OWL)  http://www.epi.msu.edu/cpon/owl.html

Funded by NIH PI: Nigel Paneth, M.D. Michigan State University
Co-investigators: Ed Hurvitz, M.D. University of Michigan; Nancy Dodge, M.D. Helen DeVos Children’s Hospital

OWL scientists hope to understand more about very early brain damage that causes CP and how it could be prevented. We will study pregnancy and birth histories in families with children affected by CP and families with children who do not have CP.

We will examine very early blood samples that are routinely collected and stored with every birth in Michigan. These newborn blood spots, along with saliva samples from parents and children, contain information that may give us clues to what might cause CP.

With participant permission OWL will…

  • Interview mothers about pregnancy, health and family history.
  • Test stored newborn blood spots and mothers’ pregnancy blood samples, and review medical records.
  • Collect saliva samples from mother, father and child to test family genetic variations.
  • Collect short questionnaires with information on child health, movement and communication skills.
  • OWL provides $75 after completion of study activities to help reimburse any costs of participation, such as travel and babysitting.

Ann Arbor Recruitment Coordinator:
Suzette VanderBeek, M.P.H.
University of Michigan (734) 936-7190
Cell phone: (734) 536-0372