Learn the Signs.  Act Early  Centers for Disease Control

This is a new campaign from the CDC to help parents and professionals to improve early identification of children with autism and other developmental disabilities so children and their families can get the services and support they need.  According to the CDC:

  • 1 in 4 children ages 0-5 are at moderate or high risk for developmental, behavioral or social delay
  • About 1 in 6 children aged 3 – 17 has a developmental disability
  • The CDC reports that less than 50% of pediatricians use valid and reliable screen tools

This new campaign has age specific milestone tracking guides for children up to 5 years of age.  CDC Milestone all_checklists    The site also includes information for parents about how to talk with their child’s doctor.  cdc_talktodoctor

Arc Michigan:

Offering a wide spectrum of programs and resources for people with disabilities and their families. Leader in advocacy programs through local Arc efforts and government at all levels.

On the Arc Michigan Site:

Michigan Alliance for Families (MAF):

MAF provides information, support, and education for families who have children who receive (or may be eligible to receive) special education services. This website can help you with finding information on special education issues as well as disability specific information.

Our goal is to increase the involvement of families in their children’s education. To do this, we offer learning opportunities across the state, leadership mentoring, and support. Parents can connect directly to a local mentor to address the families’ needs.

Leaders In Policy Advocacy (LIPA):

A leadership development program for adults with developmental disabilities and parents of minor children with developmental disabilities. The project trains and supports participants to become leaders in the disability rights movement.

LIPA is free. Participation requires a significant time commitment, and the excellent series of weekend workshops are well worth the time.

 

Gillette Children Specialty Healthcare is a UCP affiliate specializing in CP treatment.

The Gillette Cerebral Palsy Roadmap offers guides for parents of children in four age groups

CP_Roadmap

  • infant to toddler
  • early childhood
  • middle childhood
  • adolescence

The Roadmap outlines eight areas of information:

  • mobility
  • musculoskeletal
  • communications and cognition
  • feeding and nutrition
  • social/emotional development and behavior
  • self-care and daily living skills
  • sensory functions
  • recreation and fitness

The UCP national office parents guide for children with CP.

“We wrote this booklet because we wanted to share with you what we’ve learned about having a child with cerebral palsy. We’ve tried to answer many of  the questions we asked in the first few weeks after the diagnosis was made. We hope that you will find
it helpful: not only because it answers questions you have but also because it will help you realize that you are not alone as you, your baby and your family get on with the business of raising your child who has cerebral palsy.”

each-of-us-remembers-parents-of-children-with-cerebral-palsy-answer-your-questions-2013

The UCP My Child Without Limits site offers helpful information for parents of children with CP and other developmental disabilities:  

Topics include:

  • early intervention
  • feeding and nutrition
  • therapies and treatments
  • successful doctor visits
  • helpful forms
  • dental care

The US Centers for Disease Control site offers information about screening and diagnosis of CP including evaluation and milestones.

The Center for Parent Information and Resources has compiled a searchable Resource Library.  Key topics include:

  • Behavior
  • Disability
  • Dispute Resolution
  • Family Supports
  • IDEA
  • Mental Health
  • Parental Rights
  • Research
  • Section 504/ADA
  • Technology

Additional information specific to K-12 issues, Early Intervention/Early Childhood, and the Parent Center can be found as well.

 Understood is a digital resource for parents of children with learning and attention issues. The Understood Community is a place for parents to access practical advice with tools to help them navigate common parenting challenges. Parents can:

  • Seek free expert advice from trusted professionals
  • Participate in daily chats and webinars
  • Share personal experiences in a secure environment with other parents

 

 Cerebral Palsy Care in Michigan

University of Michigan Cerebral Palsy Comprehensive Care

Appointment Scheduling Phone: 734-936-7175

Mary Free Bed Pediatric Cerebral Palsy Program

Contact:  800.528.8989

Education issues for children with disabilities

Michigan Alliance for Families is a project that helps parents with school issues.  They offer one on one consultation at 1-800-552-4821, training and webinars.

Helpful Website:

MI Family2Family Health Information Center resources for children and youth with disabilities.